SCLERODERMA SELF-REPORTING FORM

Modified from John Hopkins Scleroderma Center:

 

Date________ Patient Number_______ Patient Initials ___

PLEASE COMPLETE EACH QUESTION!!!

Date________ Patient Number_______ Patient Initials ___

PLEASE COMPLETE EACH QUESTION!!!

Section 1: Instructions: Complete each question by marking one number per question. 4 is good 1 is bad.

4 is no difficulty

3 is some difficulty

2 is much difficulty and

1 is unable to do.

Example question:

 Are you able to answer questions?  4 X  3__ 2__ 1__

You answer was 4 indicated by the mark X indicating that you have no difficulty answering questions. You may also circle the number you choose.

 

ARE YOU ABLE TO:

 

DRESSING AND GROOMING:

1. dress yourself , including tying shoelaces and doing buttons?        

      4___ 3___ 2___ 1___

2. Shampoo your hair?   4___ 3___ 2___ 1____

 

ARISING:

3. stand up straight from an armless straight chair? 

     4__ 3__ 2 ___ 1___.

4. get in and out of bed?  4___ 3____ 2___ 1____

Section one continued.

ARE YOU ABLE TO:

 

EATING:

5. cut your (meat) food?   4___3____ 2____1____

6. lift a full cup or glass to your mouth? 4__  3___2___1__

7. open a new milk carton? 4___ 3____ 2____1____.

 

WALKING:

8. walk out doors on flat ground?  4__ 3___2___ 1___.

9. climb up five stairs? 4___ 3___ 2___ 1____.

 

HYGEINE:

10. wash and dry your entire body?  4___ 3___ 2___ 1___.

11. take a tub bath?  4___ 3____ 2___ 1____.

12. get on and off the toilet? 4___ 3___ 2___ 1___.

 

REACHING:

13. reach and get down a five-pound object from a shelf above eye level.

14. bend down and pick up clothing from the floor.?

       4__ 3__ 2__ 1___.

 

GRIPPING:

15. open car door? 4__ 3___ 2___ 1___.

16. open jars which have been previously open?

17. turn regular faucets off?  4___ 3___ 2___ 1___.

Section one continued:

ARE YOU ABLE TO:

 

OTHER ACTIVITIES:

18. run errands and shop? 4___ 3___ 2___ 1____

19. get in and out of a car? 4___ 3___2___1____

20. do chores such as vacuuming or yard work?

       4___ 3___2___ 1____.

 

SECTION TWO:

PLEASE RATE THE SEVERITY OF THE FOLLOWING PROBLEMS YOU EXPERIENCED IN THE LAST WEEK. IF YOU DID NOT HAVE ANY PROBLEM DURING THE LAST WEEK THEN MARK 10 AND IF YOU HAD VERY SEVERE PROBLEMS MARK ONE.

PLEASE MARK EACH QUESTION?

 

Sample question.  In the past week how much difficulty have you had in answering questions? 10 is very good and 1 is very bad.

    10_X_ 9___8___ 7___ 6___ 5___ 4___ 3___ 2___ 1___

Your answer was 10_X_. You may also circle the number.

_

 

21. In the past week, how much have your INTESTINAL problems interfered with your daily activities?

    10___ 9___ 8___ 7___ 6___ 5___ 4___ 3___ 2___ 1____

 

22. In the past week how much have your BREATHING problems interfered with your daily activities?

    10___ 9___ 8___ 7___ 6___ 5___ 4___ 3___ 2___ 1____

SECTION TWO CONTINUED:

 

23. In the last week, how much have your RAYNAOUD’S attacks interfered with your daily activities?

    10___ 9___ 8___ 7___ 6___ 5___ 4___ 3___ 2___ 1___

 

24. In the last week, how much have your FINGER ULCERS interfered with your daily activities?

    10 ___ 9___ 8___ 7___ 6___ 5___ 4___ 3___ 2___ 1____

 

25. OVERALL, considering your PAIN, DISCOMFORT, and LIMATATIONS during the last week: where would your rate your total disease SEVERITY?

    10___ 9___ 8___ 7___ 6___ 5___ 4___ 3___ 2___ 1____

 

SECTION THREE:

SKIN EVALUATION:

Instructions: On a five point scale how would you rate your skin symptoms.

 5 being a lot better

 4 a little better

 3 is no better

 2 is a little worse

 1 is a lot worse:

Mark your answer number with an X or a circle and answer each question.

 

26. In the last week, how much PAIN from your skin have you experienced?

    5___ 4____ 3____ 2____ 1___.

SECTION THREE CONTINUED:

 

27. In the last week, how much ITCHING from your skin have you experienced?

     5____ 4____ 3____ 2____ 1_____.

 

28. In the last week, how much SOFTENING in your skin have you experienced?

     5____ 4____ 3____ 2____ 2____ 1____.

 

29. In the last week, how much FLEXABILITY in your skin have you noticed?

     5.___ 4.___ 3.___ 2.____ 1.____.

 

30. OVERALL, how would you rate your skin today?

     5.____4.____ 3.____ 2.____ 1.____.

 

What areas of your skin have improved if any? ________________________________________________________________________________________________________________________________________________

 

What areas of your skin have worsened if any?

 

 

 

SECTION FOUR COMPLIANCE:

Mark X or circle your answer.

 

31. How many days do you remember to take your nutrient program?

  100%____ 90% ___ 75%___50% ____25%___ 10%____

 

32. What percentage of the time do you remember to take all of it twice a day.

   100%___ 90%____75%____50%_____ 25%____10%

 

THANK YOU FOR YOUR HONESTY AND TIME. THIS IS VERY IMPORTANT AND WITH OUT YOUR PARTICIPATION WE COULD NOT DETERMINE WHAT IS HELPING IN YOUR DISEASE PROCESS.

Turn this in to the attendant. Make sure your patient number is correct. It you do not remember your number the attendant will help you.

Study Contact

July 24, 2005 instructions for first meeting