"I Recognize the pattern" of a chemical's harm.  It is the Chronic Fatigue Syndrome pattern.  I'm not an expert in any normal fashion ... but I do recognize the pattern of 2-butoxyethanol harm.

I saw another example of this kind of thing on History Channel last night.  "Failure is not an Option" covering the USA Space program:  Apollo 12 was struck by lightning during launch, which screwed up the telemetry.

 ... the mission appeared to be doomed, even the loss of the three astronauts was looming as a possibility

When John Aaron remembered seeing the same data pattern at NASA controls a year before.  He called out "Flight, try SCE to Aux"  Flip the switch.  All along the way, NASA Controllers look puzzled, but passed the command along, "SCE to Aux"  Turns out the astronaut knew where the switch was, over behind his right shoulder, he flipped it, and data reappeared; the problem had been fixed.

I feel sort of like a John Aaron in another field.  

I recognize the pattern of harm of 2-butoxyethanol

The health crisis looming before us, is becoming epidemic ... 'What is wrong?  How to fix it?"

Margaret Diann  -  email
___________

 (not "OCX to Aux'?) That's what I thought I heard on the TV program, but was corrected by someone who seemed to know what he was talking about
.
Hello.
 
My name is Amy, I am 32 years old and a single mom of  a beautiful 10-year-old boy.  I was first diagnosed with Ulcerative Colitis last January.  Came on quickly-bleeding like crazy, in the ICU for four days.  Finally got out of the hospital 10 days and 2 transfusions later.  I unfortunately had to be re-hospitalized two other times for a flare up.  Each time I have been discharged, my GI doc says, let's just watch and see what happens.  The only meds he has me on is Levbid twice a day and Bentyl every 4 hours as needed.  Oh yea, the third hospitalization-I was diagnosed with Diverticulitis in the same area of my colon!!!!  Nice huh?
 
So just this past Tuesday evening, I wasn't feeling quite right and began having diarrhea bad with some blood and all of my muscles were giving out.  Needless to say I went to the ER and found out I was having ANOTHER flare!!!!  So I am once again on Cipro and Prednisone and once again my GI doc wants to wait and see what happens.
 
I am so tired and so frustrated with all of this.  I lost my job last January because of being on the hospital.  I lost another job just this November because of being in the hospital.  Now that I have had the pleasure of having this happen again, I just don't know what else to do.  I am scared half-to-death of things getting as bad as they did last year and not being here for my son.  I am afraid of losing my job again.  And I don't feel like I can do anything about this.  I have no insurance because of losing the job in November and can't afforf the insurance where I am now, not to mention the fact that I haven't been there long enough to get it anyway.  And no I don't qualify for Medicaid.
 
Does anyone have any suggestions as to what to do?  What to say to my doc?  Should I say anything?  Or is there anything I can do at all?   I just don't know and don't know where else to turn.
 
Amy
.
i my name is Dave 49 year old male with crohns 28 yrs ,ten years ago i had to go on ssd i could not get insurance and with hospital stays i too would get fired (they all ways said layed off but would not get called backed) but it took 6 yrs of fight with
soc. secy. and had to get a laywer to get it
has for doctor get a  doc that has work with crohns and ibd's  for years 
that is the differance not all doctors are good with all bowel diseases i when ten years and 4 doctors before i was to get one that had knownage with crohns,diet is a must ,but all are differant you have to keep a log of foods that make you sick,some it is all milk some is vegs and fruits some is wheat or bulk but everyone is not  same
,for same dieases good luck hope you are with out flare ups now
  Dave  AARDWOLF56
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Amy,  I have some ideas.  They are not what everyone else would think ... but limiting medications ... and what Dave has shared ... good nutrition are good places to start.
 
gallbladder problems?
 
 
What were you doing just before diarrhea started?
 
There is a chemical exposure that these could be suspect for ('Flu-like' symptoms that are not the flu!):
 
2-butoxyethanol
 
This is a chemical that can cause Chron's, IBD.
 
I believe this to be true ... because someone in my family was exposed to this chemical during the Exxon Valdez oil spill cleanup & he has this ailment.  He says he has seen the best oncologist in the State of Alaska, and he may not be working with the doctor & ignoring this problem at the moment, but the little he has shared leads me to believe the doctor doesn't realize he was poisoned by 2-butoxyethanol ... nor do any doctors.  It is a poisoning that is unrecognized.
 
Do you have this assortment of symptoms ?  When did they start?  What were you doing then?  Any new cleaning products or paint projects?  Small-sized red blood cells and blood in urine are a medical clue to this chemical's harm
 
Well, regardless of what caused it (other than to in future avoid 2-butoxyethanol) what to do?
 
Get Rubin's book, Patient Heal Thyself.  Learn about good nutrition and glyconutrient food supplements ... the theory, in part, is that given the right nutrition and the 'sugars' our body needs for cell to cell communication ... the body heals itself.
 
I think the chemical I've studied causes most of the autoimmune issues in our world today - more than any single other chemical exposure, at least, that it is the cause of diabetes, CFS, CFIDS, NHL and many cancers & birth defects.  Most particularly autoimmune metabolic issues, but starting with THE FATIGUE of 'autoimmune red blood cells'  AUTOIMMINE hemolytic anemia.
 
Are you TIRED, too?
.
Margeret.
 
I was doing nothing when the diarrhea started.  I just knew that I hadn't been feeling "right" for whatever reason.  Thank goodness I listen to my body more these days.
 
As far as gallbladder problems, I had that pesky thing removed about eight years ago and still get stones from time-to-time.  It's just the best thing!  NOT.  That's when I began having the IBS symptoms and they really are bad when that wants to be a pain.
 
Yes, I am tired-always tired.  I am the self-proclaimed queen of stress and don't always talk abuot it and that makes it worse.  I get so depressed about everything and feel so alone sometimes-it's really quite sad.
 
Amy, I see the pattern of this chemical's harm ... suspect it could have started about 9-10 years back.  From 2-butoxyethanol exposure, it doesn't become full-fledged IBS the next day after exposure ... it just seems to add on problems along the way ... heading to harm to the glands, kidneys, liver.  Thankfully it doesn't cause all the things in the same person that it could do ... but part of the pattern is often thyroid ailments & even kidney stones (like 15 years later)
 
More probable that you have had exposure & you would have started feeling VERY TIRED at that time. 
When did the excessive fatigue and depression start?  Look over what I'm sharing. 
It took me most of 4 years to find this chemical out.
It is not that rare, just not recognized.
 
 

Diarrhea - a strong clue

How does your body 'complain' about a chemical exposure?

Please share this info with your doctor: www.valdezlink.com/acute.htm 

'flu-like' symptoms may be a chemical exposure http://www.valdezlink.com/cfs/flu-like.htm

Do  you remember a serious FLU?  I suspect so,

and I suspect it was not the flu, but this chemical's poisoning

 

Post is there after all -  GOOD!

http://groups.msn.com/ColitisCrohnsDiseasesupportgroup/general.msnw?action=get_message&mview=1&ID_Message=1181
General : new member
From: MSN Nicknamemy_girl_amber  (Original Message)    1/24/2006 
Hi everyone,
 
My name is Kim. I am the mom of 3 teenagers. I recently found out that my eldest, my 17 yr.old named Amber has ulcerative colitis.  I won't try to pretend that I fully understand what you are all going through I just hope that this site will give me a bit of advice that I can relay to my daughter.  She doesn't even know that I've posted as she does not seem as concerned about her disease as I am.
 
It started 2 years ago with bouts of diarrhea with blood and mucous.  She had anywhere from 8-10 BM's a day, even waking her at night.  By the time we did the blood tests, stool tests and got an appt with a specialist the symptoms had gone away and she was feeling better.  The Dr. said  maybe it was some kind of bug and did not do a colonoscopy. It lasted for about 6 weeks.
 
Now 2 years later, Amber say's "mom, the symptoms are back", although not as bad as 2 years ago.  We got in to to see the GI specialist quicker this time and the colonoscopy confirmed the colitis.  He said it's a mild colitis but it has affected her entire colon. He put her on Aascol, 8 pills a day (Ugh!) and thankfully they started working within a week and she has been symptom-less ever since.  We go for her 1 month follow up tomorrow.  She is taking it very well which is great, but I'm concerned for her future and I'm concerned that she had to take meds for the rest of her life.  I don't think she truly realizes how bad this disease can get.
 
I guess I'm wondering if anyone has tried changing their diet to all natural and slowly weaning themselves of their meds.  I hate to mess up a good thing cause as I said the Asacol has done wonders, but I can't help but think that the meds might eventually not be as effective and may cause other problems.  I'm considering seeing a ND (naturopathic doctor) for advice.  From what I've read, our digestive system affects our bodies in a great way, bad or good and to alter what we eat can amazingly heal us. I realize that it won't be an over night cure, but I think it's worth looking into.  She is only 17 and has a long life ahead of her. She is athletic and is off to university in the fall and I want her to have a good life. Any advice?
 
Can someone explain about remission, which is what she is in right now, I guess?  How long does it usually last, and when the symptoms come back...then what...do they change her meds? Can she go for years without a flare up?  Is it possible that her case stays mild and she never sees another symptom? (I do realize that all case are different)
 
Thanks for listening, any help would be appreciated. Hope everyone is feeling well today.
 
Kim

 

 REPLY:

my story  Hi my name is Marisa and I’m 26 years old. At the age of 18 I was diagnosed with Crohn’s Disease. I was a senior in high school and like everyone else that age, I thought I was invincible. I was wrong.

I was also diagnosed with Crohn's Disease at 17 years old.  I was a senior in high school and had my whole life ahead of me too.  That last year of school was spent in and out of hospitals and most of my last semester I was continually in a hospital bed.

1-29-06

groups.msn.com/ColitisCrohnsDiseasesupportgroup/general.msnw?action=get_message&mview=0&ID_Message=1168&LastModified=4675558056917270389

Well, I see I cannot contact members on this Crohn's forum

But the other post did come through!   Maybe the moderator was looking at it