Corrections for web pages on comments at Gulfwarvets.com

Corrected posts - January, 2004

Feb, 2004  -  March, 2004

posted February 01, 2004:
Here's some ice

If you like music, go here valdezlink.com/gwv/wintertime.htm (where?)

Anyway, I have looked into the report on organophosphates.   They think of pesticides when they mention organophosphates, I think.

Anyway, I don't think this cause lines up as well with the total package of symptoms that Gulf War Vets have ... compared to ethylene glycol monobutyl ether (aka 2-butoxyethanol) as you have probably noticed already: that is my focus: a chemical that troops were exposed to that causes about all of the symptoms you have ... yet has not been studied.

OK to look everywhere else, too. But I'm not planning on covering the same ground if you know what I mean.

Sleep?

Marky-Mark: "Sleep, now there's a strange concept. I alternate a lot. Sometimes I sleep all the time because I'm so worn out, this is usually during the day, and other times I sleep very little due to nightmares, and night sweats which are even worse. It sucks, because if you tell a doc that sometimes you sleep, and sometimes you don't, they average the two, and say it's normal. I used to only have nightmares occasionally, but since this stuff in Iraq started, it's been almost nightly."

posted February 01, 2004:


Oh, they average the two, do they?

A lot of your comments are worthy of a comment, but I suggest you go thru this list I put together (about 9 pages) and make this your personal OVERVIEW - So doctors have more input than you can give them in an office visit. valdezlink.com/gwv/symptoms.htm

Cross out the things that don't apply. Circle or star those that do; add your own if you have others... & help your doctor get the BIG picture. This is hard for many as there are so many specialists out there and they want to focus on their specialty - which may or may not be as helpful to you.

Now, I am copying and mailing to my US Senator, Lisa Murkowski, and to the Kentucky and Indiana Commisioners of Health all the web pages I note here - valdezlink.com/gwv/gws_how_to_find.htm
Each of these has written to me on the topic, and that means they prefer a written reply. I feel that with the right blood work this culprit solvent/poison/pesticide can be found out ...

Now, Travis, I am concerned that you are still having watering eyes and dark urine. That is an indication that you are RIGHT NOW having fresh exposures. Look back to when this seems to occur and see if you can stop new exposures to this ethylene glycol ether.

The loss of interest in sex is common place - One of the expressions of the endocrine disruption.

Low back pain? That is sometimes indicative of kidney problems. Per the info on this chemical, it is a good idea to have regular kidney and liver function level tests.

AND Travis,
I am concerned about that much 'sleep.' When is the last time you had an in depth look at the blood? Complete blood counts with a check on the absolute cell count and the retic ratio (not much extra, really) but maybe something else is going on.
valdezlink.com/check_blood.htm

posted February 01, 2004:


Well, my friend,

It's the GUNK. Wouldn't you know it, it has 2-butoxyethanol in it, even though it only says 2% ... this is horrible stuff, and especially if you've already had your fill of it. http://www.gunk.com/msds/L212.PDF

And the hazard warnings: defatted skin; rinse eyes for 15 minutes, don't wear contacts.

Someone told me that at a high school car wash they used this stuff; the adult there commented that he got too much exposure one time and lost all the color in his eyes ... wow ... that's trouble big time.

I'll give this more thought; but GUNK is not for use in your little RV. Use outdoors; wear the respirator and the goggles and the chemical retardant gloves. valdezlink.com/pages/protection.htm

posted February 02, 2004
:
Goodness ... whatever they sprayed the decks with - affected not only those doing the work; but also those who came by later most likely, too.

The Navy Seabees have a high incidence of 'Gulf War Syndrome' and I'm hearing reports of these in other time periods as well.

quote:
I think it was the reserve Bees that had alot of symptoms. I remember reading alot about them, not sure were they were out of. They dealt with alot of Ammunitions if I remember right, on and off loading, not that I think it was the cause.-Seabee from healthforum (link no longer there)
Hmm ... on and off loading? That makes sense to me; the longshoremen of the Exxon Valdez oil spill cleanup were exposed to the bad chemicals. Sometimes the barrels leaked; and one shared with me that every time he opened the holding containers of barrels, he would get a 'whiff' of the chemical. Since then he survived colon cancer; but the horrible fatigue. He said, "Am I tired? I just thought I was lazy!"

Moms just using hobby products can be affected; there is a long list of those products included here as well

WD40 doesn't seem to have this; but oil & things to be careful of all the same. Here is a sample list of products which contain 2-butoxyethanol (ethylene glycol monobutyl ether) valdezlink.com/pages/2-butoxyethanol_inthese.htm

As you can see by some having 10%, 20% even 50% concentration ... some are very, very hazardous

This Gunk has 4-5% of the 2-2-butoxyethanol

Check for others you might use Here is another list to check: in common things used by the public.

Remember, aerosol version is most hazardous for products which contain the 2-B as it is more likely to get in your eyes. Eyes burning the way you describe, Travis, is more likely symptomatic of this type of exposure than other things you could think of.

posted February 11, 2004
:
No, the man who helped me understand so much about the health problems from the oil spill cleanup days was Richard D. Nagel. He had documented nervous system (by the Court and the Social Security Administration) which he doesn't even mention when he tells his story last. He also told me that he didn't sleep at night. The co-worker of his shared with me that he had a broken little finger that hadn't healed in 10 months and his orthopedic specialist was truly stumped. So I saw some possible similarities & hadn't seen the discussion on forums, & was just inquiring.

When the evidence comes in on the blood, it will be irrefutable, and what anyone thinks won't matter.

posted February 05, 2004
:

Is this or any of the synonym names listed on the pesticides/solvent list you were exposed to?

pentachloro-Phenol CAS NO is 87-86-5
Synonyms: 2,3,4,5,6-Pentachlorophenol; chem-tol; Chlorophen; cryptogil oil; dowcide 7; Dowicide 7; Dowicide EC-7; dow pentachlorophenol dp-2 antimicrobial; Dura-Treet; durotox; EP 30; Forepen; fungifen; glazd penta; grundier arbezol; lauxtol; lauxtol a; liroprem; Osmoplastic; Oz-88; PCP; penchlorol; Penta; pentachlorofenol; Pentachlorophenate; pentachloro-Phenol; Pentachlorophenol ; pentachlorophenol, dp-2; Pentacon; penta-kil; Penwar; peratox; permacide; permagard; permasan; permatox dp-2; permatox penta; permite; Pol-NU; priltox; santobrite; Santophen 20; Sinituho; term-i-trol; thompson's wood fix
Source: chemfinder.com

PENTACHLOROPHENOL - http://www.state.nj.us/health/eoh/rtkweb/1473.pdf (feb, 03)

PENTACLOROFENOL - http://www.state.nj.us/health/eoh/rtkweb/1473sp.pdf (march, 02) (in Spanish)

Seems to reference liver and kidney problems; that it likely causes reproductive harm; that it causes cancer.

No comment on blood damage (red blood cells & blood forming organs), central nervous system damage, or lymph damage.

Possible immune system damage, too? Skin damage would be like 'all the time acne' (Skin damage from ethylene glycol monobuyl ether may be from oil cells being killed causing 'defatted' skin in areas of too much contact).

Based on this EPA website comment, there would likely be endocrine disruption, too: back up

 

quote:
The term organochlorine refers to chemical compounds that have a chlorinated hydrocarbon structure, that is, they are formed from atoms of hydrogen, carbon, and chlorine. Although their effect may be much weaker than the body’s natural hormones (like estrogens, androgens, and thyroid hormones), they are nonetheless suspected of disrupting the endocrine system, resulting in harmful effects like reproductive and developmental defects and certain cancers.

I wonder what cancers would be commonplace with this chemical besides liver cancer? With ethylene glycol monobutyl ether one would suspect prostate cancer and bone cancer, such as those who paint often have; also leukemia, lymphomas, tumor of the brain, melanoma, stomach cancer and those as well.

More EPA basic info
Author Topic:   Having a Baby? Save umbilical chord blood
Mother Margaret
Member
 posted February 01, 2004:
In our country we should start regularly freezing umbilical chord blood

I heard on TV by a well liked DR (sorry can't remember his name - but I will) on a Larry King show ...said that people should save the umbilical chord blood at birth. If in the future the baby should need stem cells, they would have it.

Leukemias and lymphomas are cancers that can happen with this chemical.

posted February 01, 2004:


When you get a blood test for something next, as the doctor to find the absolute cell count valdezlink.com/pages/absolute_cell_count.htm    valdezlink.com/check_blood.htm (it is a simple way to see if all is OK with the lymph system per one report)

It could be that you have multiple symptoms and that if the group of Vets has similar blood problems, you will qualify regardless of the current deadlines, etc

You must force yourself to see a good doctor. I'd go to a hematologist if you have a choice. There is so much that the blood tells you about your health. And you know what they say, the sooner you find out what's going on, the better your chances of overcoming ... Now, soldier, let's march to the doctor's office!
valdezlink.com/pages/no_fear.htm A similar 'mother talk' to another group of workers

Author Topic:   a dead child
Jody D. Crockett

Singular post to gulfwarvets.com

posted October 11, 2000:   
I am JDC4058. I served in the storm bravely and honorably just like the majority of you out there. I have something tearing my heart out and I would like to know if there is anyone out there who has suffered the same thing as I have.
In November of 1992 my wife gave birth to by all appearances a healthy baby girl. 15 days later my baby girl was dead from an unknown illness. All of her organs began shutting down all of a sudden and there was just nothing that could be done to save her. Her liver was the first organ to fail. After that all of her other organs just shut down one by one. After her funeral I hired a medical malpractice lawyer to find out just what she died of as the resident pathologist in the hospital in which she died could not give me a definitive cause for her death. Her death certificate states that she died of the Herpes Simplex Virus. That is a funny thing as neither my wife or my self suffer from any type of Herpes Simplex Virus. I don't know what to do. I don't know where to go for help. My heart is broken forever and I would dearly love for one of my comrades in arms to tell me what has happened to my beautiful little girl. Please help!

Mother Margaret reply:

posted February 02, 2004 
quote:
In November of 1992 my wife gave birth to by all appearances a healthy baby girl. 15 days later my baby girl was dead from an unknown illness. All of her organs began shutting down all of a sudden and there was just nothing that could be done to save her. Her liver was the first organ to fail. After that all of her other organs just shut down one by one.

I was so touched by your grief. If this were something only caused by the parents, then why would your baby be healthy for two weeks?

I heard of this happening with some of the workers on the Exxon Valdez oil spill cleanup. Without medical help close at hand, it is sometimes diagnosed as 'pneumonia' You know, we have heard of such in Iraq not too many months past.

Anyway, hospitals do use ethylene oxide for cleaning, I think; also it is in 409 cleaner and was in the Corexit experimented with during the Exxon Valdez oil spill cleanup. This woman didn't get in 24 hours of work, as the housing barge she was on had some chemical smell filtering in ... her body started shutting down...

Another man was found dead. He was an experienced fisherman and had an easy job of shuttling the products. His lungs had filled up with fluid.

Another woman shared with me that her son was helped when his organs started shutting down, but about 5 others died because they couldn't get to help fast enough.

I suspect this chemical or TOO much exposure to 2-butoxyethanol. But in the case of ethylene oxide any exposure is cancerous (a 'deminimus carcenogen') AND it causes pulmonary edema. Look at more info on this as well as 2-butoxyethanol here

This should be explored for our troops today. Later, more info.

I also recall a woman who worked in a non ventilated recently painted office coming down with the harm of this chemical, too; blood damage was immediate she said, & more.

But for the loss of anyone, and most especially a newborn child, the joy of your life ... there are no words to help

7-5-05 Is SIDS age related?

Author

  Still have eyes hurt & dark urine?

Mother Margaret
Member
 posted February 02, 2004 
Maybe you are being exposed to the same chemical that harmed you in the gulf war?

Now, Travis, I am concerned that you are still having watering eyes and dark urine. That is an indication that you are RIGHT NOW having fresh exposures. Look back to when this seems to occur and see if you can stop new exposures to this ethylene glycol ether.

The loss of interest in sex is common place - One of the expressions of the endocrine disruption.

Low back pain? That is sometimes indicative of kidney problems. Per the info on this chemical, it is a good idea to have regular kidney and liver function level tests.

AND Travis,
I am concerned about that much 'sleep.' When is the last time you had an in depth look at the blood? Complete blood counts with a check on the absolute cell count and the retic ratio (not much extra, really) but maybe something else is going on. www.valdezlink.com/check_blood.htm

Please note thread (until moved here) at end of "How well do you sleep?"

Second hand solvent exposure?  For those who ran the German Museum?

Sleep too much?

Author Topic:   Coalition Forces affected too
Mother Margaret
Member
 posted February 03, 2004:
Viva la France!

Study Needed


Can you name the coalition forces of 1990-1991?

posted February 07, 2004:
It stands to reason that civilians in the same vicinity could be affected by the same things troops were.

I have also heard that for civilians working for DoD in the States for the companies that 'decontaminate' equipment. One soldier who drove semi trucks for the military told me that all they use for that is DAWN. That they were sprayed with it as well as the equipment ... every time they thought necessary. (Maybe the ethanol used here C2H6O is not as bad as some chemical compounds... but with repetitive exposures?) valdezlink.com/gwv/chad4.htm (As with anything, it is the amount of exposure that can present a health hazard. In this soldier's case she is now having health problems that are hard to figure out, enlarged spleen, etc)  How is Chad today?  early 2005?

I have a rash on my side, from leaning over that bathtub when cleaning a couple of summers ago. Since I've learned that the hazardous chemical I've been studying was in that cleaning compound I was using then. Every time I get too much of any chemical, like glucophage for diabetes ... it reappears ... and I stop doing whatever it was I was doing (my own built in 'watch out' barometer)

Since she has several symptoms of one of the chemical exposures troops also had, would she be willing to ask the doctor for a couple of extra tests? 'Retic' ratio & look at red blood cells? More info

posted February 09, 2004
quote:
Mother Margaret, who exactly are you anyway? - Pam

 

quote:
I would also like to know who you are Mother Margaret, especially after your comments to Robert a while back about losing the weight for the MRI machine. The study Robert was undergoing could eventually help all of us. Just my 2 cents worth. - Rat

http://www.valdezlink.com/who_amI.htm
and

Why this cause of 'gulf war syndrome' symptoms goes undiscovered by the USA!

And here are some 'start up' thoughts shared in another heading on this forum

So with this in mind - if you will look through what I've shared & reserve comment until you've done so, I am concerned about all our citizenry. I feel that if you get an accurate diagnosis on your blood (more important than knowing the specific type of CNS damage) you will help our entire country who is falling one by one ... many from the same harm you have suffered.

I looked thru the organophosphate comparison to your symptoms, and feel that ethylene glycol monobutyl ether effects would line up better ... such as this example.

I understand the betrayal you feel; but on the other hand, what if it is the USA that has been betrayed by the chemical companies - for their own self gain? Poor Australia in 1995 and Karachi in 2003 whose people were exposed to a bad product: Corexit 9527

Thank you one and all - for sharing your health's story. Only as we speak up, can others really learn what happened to you. Never stop!

posted February 09, 2004
Since all the other things have been well studied, you are better served by my focus on the chemicals you have been exposed to ... than by my 'covering the same ground' so to speak

Too bad, with proof that you were exposed to 2-butoxyethanol and diethylene glycol monobutyl ether, that the DoD doesn't quickly say what they KNOW are the exposures

AND that the VA has NOT studied this

... a chemical exposure that all by itself causes all the 'gulf war syndrome symptoms' including the reproductive damage and 2nd hand exposure

I say, why hasn't this been studied?

What if it IS the main cause of harm?

-Margaret

 

Calcium?  Iron? Tiredness that won't go away - no matter how much rest I get

Author   Let me ask YOU a question
Mother Margaret
Member
 posted February 09, 2004
IF you had to give up the best cleaning products around; the best paint; the best degreasers for working on your car, etc ...

because to keep these products would mean you & your loved ones were at risk for 'gulf war syndrome' as you have come to know it ...

Would you vote YES or NO?

posted February 09, 2004
You have good points also; it really was a surprise to me to learn that both 2-butoxyethanol and diethylene glycol monobutyl ether were classified as pesticides by EPA and tested for endocrine disruption. I've asked for their findings twice now; and so far, no reply.

I've had help from many 'experts' This one shares about long term effects with chemicals that don't bioaccumulate.

Lysol Tub'n Tile is registered as a pesticide (Reg No: 777-51) and has diethylene glycol monobutyl ether in it at 6% concentration

409 Cleaner is NOT safe. Here is the best info I've found on it with more info on the top 3 ingredients. http://www.herc.org/library/msds/409.htm

Here's how you can check out products you may use.

posted February 10, 2004:
More on Sleep

I found this article to be very helpful.
http:/
/www.ninds.nih.gov/health_and_medical/pubs/understanding_sleep_brain_basic_.htm

Author    Are Current Troops in Afghanistan/Iraq at Risk?
Mother Margaret
Member
 posted February 11, 2004
... for 'Gulf War Syndrome' Symptoms?

A Gulf War Vet wondered about Staff Sgt James Alford & passed along the news article to me. He is not an isolated case.

Yesterday I spoke with Brian's brother, a Green Beret who has symptoms as we have been describing - since coming back from Afghanistan. He says he had exposures to jet fuel when standing behind the C-130s awaiting boarding for paratrooper jumps (He had done hundreds).

He also did a lot of weapon cleaning with a lot of different gun cleaners including graphite types (MOR?), Castrol and Remol - the most expensive he could find. He wasn't limited to CLP especially after the Towers were downed

He said he had his weapon cleaning kit & he was going to look at the ingredients and warning signs. He may not find the ingredients listed, even if they are there; but there is a number a doctor can call to get proprietary info - & he may need to do that.

I asked a Product Developer, "Can 2-butoxyethanol be in a product and not named?"
Reply

He said he was careful to use no personal pesticides reflecting upon the combined personal pesticide use and shots in combo that seemed to cause Gulf War Syndrome with your group. He only slept under a net. (He still could have been exposed to the pesticides sprayed in the living/work area, couldn't he?)

posted February 11, 2004:
So are airplane and automobile mechanics.

I know of a mechanic who is 31 and has been doing automotive type repairs since his teens; he likes to use Break Free (CLP?) ... says it works really well. He has also recently started complaining about having NO ENERGY and he is a highly motivated, hard worker.

I'm sure that if the symptoms start appearing no one will correlate it to the chemical used in degreasing metal parts, and cleaning hands, etc.

I have heard of some auto mechanics having to change jobs because they can't take any more of the job exposures.

Same would be true for automotive painters - OSHA looked into it a year ago for 46,000 automotive painters (prostate or bone cancers?) I keep thinking I will call and see why they looked into and what they learned.

I keep hoping that some group, such as yours, will get a fully accurate diagnosis & stop the harm of this chemical.

... which most likely has been harming our nation for over half a century, currently with NO end in sight

This editorial has some interesting points along the lines that many products we use in the home add to the chemical load that we, and our children, would have.

As with any exposures, it is the dose that makes the difference. How strong is the chemical (poison) in the product? What 'personal protective equipment' should be worn vs was worn? How much time exposure does one have each day &/or per repetitive days? Wouldn't you agree that the hunter who uses the gun cleaning product 2-3 times a year is at less risk than the soldier in non wartime? ... and that the soldier during war time has more exposure to chemicals in gun cleaning compounds than those of non-wartime? The material safety data sheet on one bore cleaner/or CLP said for repetitive use to use chemical retardant gloves, goggles & protective clothing; not to smoke or eat during use, etc. Now if the aerosol version is used, and the soldier is putting his/her eyes close to the sprayed gun parts, sad story: this is the worst exposure! EVOS PPE

Now, many times this 2-butoxyethanol is hidden & not mentioned on the product. You can pull a bottle of Simple Green off the grocery shelf today, and it will say 'non toxic' But some odd warning signs are there that sure look like '2-butoxyethanol' warning signs. Look at this MSDS and you will see that 2-butoxyethanol can be as much as 6% of the product (not safe for home use, per one product developer). Now multiply that by who knows how many products?

You may think other things are more relevant to the Cause(s) of 'Gulf War Syndrome' ... but are they? Could it be that something as simple as this has harmed so many lives?

posted February 13, 2004
:
... around munitions?

Add on to Topic: How well do you sleep? February 02, 2004

Goodness ... whatever they sprayed the decks with - affected not only those doing the work; but also those who came by later most likely, too.
The Navy Seabees have a high incidence of 'Gulf War Syndrome' and I'm hearing reports of these in other time periods as well.

quote:
I think it was the reserve Bees that had alot of symtoms. I remember reading alot about them, not sure were they were out of. They dealt with alot of Ammunitions if I remember right, on and off loading, not that I think it was the cause.-Seabee from healthforum

Hmm ... on and off loading? That makes sense to me; the longshoremen of the Exxon Valdez oil spill cleanup were exposed to the bad chemicals. Sometimes the barrels leaked; and one shared with me that every time he opened the holding containers of barrels, he would get a 'whiff' of the chemical. Since then he survived colon cancer; but the horrible fatigue. He said, "Am I tired? I just thought I was lazy!"
 
I have many friends who have been mechanics and machinists for years....they aren't sick. There are 1000's of auto mechanics across the US and I have never read about them being sick.
posted February 13, 2004
Probably because they haven't tested auto mechanics long term for the effects of the degreasers they use to clean their oiled hands and that they use to work on machinery.

It's a study that should be undertaken. One mechanic said he really liked to use Break Free because it worked so well ... I have been looking this past week for what the solvents are in Break Free and I can not find them; in fact the info they do give, was down yesterday (MSDS on pdf)

I did speak last month with a furnace maintenance man & he just happened to comment that he had a broken bone that had not healed in 3 years; and that when he moved to our area about 12 years ago he came down with diabetes. He said there is no reason why he should have diabetes. As you might imagine I gave him info on what to check more in the blood in case it is from the chemical, 2-butoxyethanol. When he gets his results back (assuming the doctor will order these tests), he'll be letting me know & I'll pass it on.

There are some studies on the fumes with new chemical additives that mechanics are being exposed to today. The allergic symptoms include watering in the eyes, discharge of fluid in the throat, or skin rash. Some people are reporting heart palpitations

MTBE When the MTBE is in the air, another chemical reaction also occurs; it can be converted into a chemical called tertiary butyl formate (TBF)

 

quote:
TBF: ACUTE EFFECTS HARMFUL IF SWALLOWED, INHALED, OR ABSORBED THROUGH THE SKIN MATERIAL IS EXTREMELY DESTRUCTIVE TO TISSUE OF THE MUCOUS MEMBRANES AND UPPER RESPIRATORY TRACT, EYES, AND SKIN. INHALATION MAY BE FATAL AS A RESULT OF SPASM, INFLAMMATION AND EDEMA OF THE LARYNX AND BRONCHI, CHEMICAL PNEUMONITIS AND PULMONARY EDEMA. SYMPTOMS OF EXPOSURE MAY INCLUDE BURNING SENSATION, COUGHING, WHEEZING, LARYNGITIS, SHORTNESS OF BREATH, HEADACHE, NAUSEA AND VOMITING. TO THE BEST OF OUR KNOWLEDGE, THE CHEMICAL, PHYSICAL, AND TOXICOLOGICAL PROPERTIES HAVE NOT BEEN THOROUGHLY INVESTIGATED.source

Back to your topics, Anything helpful here ATSDR - Testimony: Potential Health Effects of the Gulf War (9/16/92)

Who was there at end of war? *

Calcium, Iron - Any help here?  *

I served during the Gulf War but was not deployed over-seas. Shortly after coming home I started having what my doctor thought were anxiety attacks until I had a grande mal seizure. At first they started out as if I was totally confused and disoriented.  I am also having what some call memory loss, but not severe. (may be the seizures?)  Buck

posted February 16, 2004 09:39  


quote:
grande mal seizure

Reply, Mother Margaret:  Brian's brother just returning from Afghanistan has the assorted 'gulf war syndrome symptoms' and said he had a grande mal seizure that almost took his life.

This is something to do with the Central Nervous System?

 

quote:
(Per MERCK) In young people can be from metabolic disorders, such as abnormal blood levels of sugar (glucose), calcium, magnesium, vitamin B6, or sodium. Seizures starting after age 25 may be caused by structural damage to the brain such as from a head injury, stroke, or tumor. When no cause can be identified, seizures are called idiopathic.

People with a seizure disorder are more likely to have a seizure when they are under excess physical or emotional stress or deprived of sleep. Strong stimuli that irritate the brain--such as injury, certain drugs, sleep deprivation, infections, fever, low levels of oxygen in the blood, or very low levels of sugar in the blood--can trigger a seizure whether a person has a seizure disorder or not. These seizures are known as "provoked seizures." Avoiding such stimuli can help prevent seizures.


Some interesting points. When you have a lot of ailments, docs prescribe a lot of medication. This Green Beret said he was on way more medication that he was used to taking.

I am sharing this info (and more) hoping he will get an accurate diagnosis & stop this carnage among our troops today.

He also talked about the bones hurting in the back and neck.

Can this type of fatigue lead to paralysis?

Symptoms - technical terms

Autoimmune Hemolytic Anemia info

Overview with definitions
Author

   Milk Thistle may help liver

Mother Margaret
Member
 posted February 15, 2004:
Milk Thistle has been found helpful by some.
Sunshine
Member
 posted February 16, 2004 
As an Herbalist, Milk Thistle is a good detox for the liver. I would suggest that anyone whom is going to try this or any other Herbal remedy speak to a Herbalist at you local area, or research it thoroughly.

It depends on your individual level of liver toxicidy. For my husband, his liver enzymes were so high that it would not work.

It's worth a try.

http://www.epa.gov/endocrine/inventory/DOD-015.html

EDRI Federal Project Inventory:
Neuroendocrine Pathways Controlling Male and Female Reproduction Associated with the Gulf War Syndrome

posted February 16, 2004:  Mother Margaret -
One chemical they were exposed to
2-butoxyethanol
and
diethylene glycol monobutyl ether
 
Not only solvents, but pesticides and poison; teratogens valdezlink.com/same.htm
  
Targets Testes Maybe an autoimmune situation:  Spontaneous Infertility
  
Plus Endocrine Disruption - including reproductive:
One Exxon Valdez oil spill worker (exposed to 2-butoxyethanol) said she had cysts on her ovaries and her uterus doubled in size and was growing into itself - hysterectomy

Topic:   Blood in stool heart problem

posted February 17, 2004:


What should you do now? Educate them. They need help. Doctors don't study chemical exposures or their effects. They are clueless. BUT for those who want to help, there is HOPE

How we need doctors with an interest to push thru this 'barrier'

I'm so glad you have a nice family, 'enough is enough' AND three children? What a blessing!

I would be very careful about taking medications. You are maxed out on chemicals and adding more along with the blood's need for oxygen (I suspect) could cause seizures

Pull out the 'short list' of why doctors should be interested in this topic ...
(It will fit on a one page Word Doc and it faxes nicely)

Then share this (best help, I believe, in finding the harm to you):

For these -

  • Use this as a chart to identify your own symptoms
  • Circle those that apply
  • Cross off those that don't
  • Add your own
  • Help your doctor see the BIG Picture

Most recent helps in finding the blood damage
(if you have the assorted symptoms)
& are looking for the cause of fatigue valdezlink.com/hb/2-B_causes.htm
www.valdezlink.com/paralysis.htm
Overview chart on blood testing
The doctors should know how to test for these,
or could consult with a hematologist!

valdezlink.com/check_blood.htm
Retic ratio & looking at red blood cells is very important (it supports anemia, but not a diagnosis per se)

The fatigue you have, if caused from the solvent exposure, is blood damage to the red blood cells; it hides out, and until we have a lot of exposure, it may take years to be easily identifiable. But I firmly believe it is the key to finding the 'common denominator'

Now if that headache is evidence of endocrine disruption and is at the back of the head and running down the neck ... isn't that in the area of the pituitary? If the meds do no good for the headache, maybe we need to find some kind of charcoal to neutralize these chemicals:

C6H14O2/CH3(CH2)2CH2OCH2CH2OH
or
C8H18O3 / CH2(CH2)3OCH2CH2OCH2CH2OHDGME
or ?

But the point is, you are harming yourself more every time you take medication (unless it is essential and doing you some good) AND until we get an accurate diagnosis on the blood how can we proceed to helps? ... and to preventing harm to our future generations and other innocents in our country?
There are many, many solvents that are not safe for people to use.

Some best helpers and testing labs and other common sense helps
People are praying for you - That is the BEST help

Author  What SOLVENTS were YOU exposed to - Cause Birth Defects
Mother Margaret
Member
 posted February 17, 2004:
So, for the list of solvents/pesticides troops were exposed to, can we find out the expected sources of exposure? On line source: http://books.nap.edu/books/030908458X/html/569.html#pagetop
Back up pdf copy of Solvents/Pesticides Gulf War Troops were exposed to per [u]Gulf War and Health[/u], Vol 2 Insecticides and Solvents, Feb, 2003, p. 612

Surprisingly many ethylene glycol ethers are also listed as pesticides; and they are poisons; Not just solvents. (So if thyroid, blood pressure, blood sugar, etc are out of normal range - these could be the culprit. And those horrible headaches at the back of the head and down the neck - Is this in the area of the pituitary gland?)

Then troops can check out which ones they likely had exposure to and start finding out what those solvents do. If they bothered to put them on a list as an exposure; then they expected that you were at risk for enough exposure to be significant?

I had a young man contact me yesterday from the general public, who was concerned about similar harm from CAS No 2807-30-9 ethylene glycol monopropyl ether. It was in the siding he had been putting on his house for the past 3 years. This is information I shared with him; and I learned some things, too, like how many SOLVENTS cause birth defects.

If you have been able to have children ... thank God; there are some with zero sperm count and they will not be able to have children; this chemical (2-butoxyethanol aka ethylene glycol monobutyl ether) damages the testes besides causing reproductive damage or birth defects. (Even true for the general population)

Robert:  http://www.gulfwarvetlawsuit.com/page6.html

posted February 21, 2004


http://toxnet.nlm.nih.gov/cgi-bin/sis/search/f?./temp/~nAnQ00:2
if this doesn't come up
- back up
Look at all the ethylene glycol ethers that are causing birth defects
http://www.cdc.gov/niosh/rtecs.html Put in CAS No 111-76-2 or 112-34-5 and see what matches there are

What is the CAS No for mustard gas? You can do a comparison. I'll look thru this; however, they know that there are birth defects - but caused from what? That is the question

This is FOR SURE - These solvents damage the TESTES and the reproductive system in general per endocrine disruption

Check what products contain these chemicals - 

valdezlink.com/pages/products_hazard_chemicals.htm 
valdezlink.com/pages/watchout.htm 
valdezlink.com/2-butoxyethanol_inthese.htm
valdezlink.com/pages/household112-34-5.htm

Author Topic:   Simply Stated - "The Common Denominator"
Mother Margaret
Member
 posted February 17, 2004:
Re: Do you have health concerns since you served?

--------------------------------------------------------------------------------

There is more in the blood than shows up at first glance. Borderline normal is not OK for your group. And that is what shows up for RBCs most likely.

First the RETIC ratio will give a preliminary indication if solvent damage to red blood cells ... by their dying off prematurely. As long as bone marrow is working, it produces more and more red blood cells (thus the count doesn't look off) BUT they don't do the function that red blood cells should do: thus the fatigue.

The lack of sleep, the difficulty in relating in marriage and at work, the depression ... are symptomatic of the Central Nervous System Damage. The headaches are not likely in the brain as doctors would first think. Are your headaches like red hot pokers & in the back of the head and down the neck? I suspect damage to the pituitary gland.

For support from other vets there are several active Discussion forums where you can give and take and learn a lot. Gulf war vets; gulf war help would be good search words.

Keep checking this out. I believe the military is on the verge of learning the secrets of your harm. And you will be helping the public and today's military, too! God Bless you! - Dear Maggie as posted on healthboards.com

quote:
The whole depression/fatigue/lack of concentration/trouble sleeping can really be narrowed down to one thing in my opinion. If you have one it can lead to all the others in many cases. All my bloodwork was normal, I think my problem was depression but I did not want to admit it, I did not want to be diagnosed with such a thing. I was having marital and work problems at the time as well as moving to a new home. Throw all that together and you one depressed guy who cant sleep, and as a result is fatigued all day and can't concentrate for crap. I was worried about GWS, but I think it was more a situational thing. Since then I have started working out heavily and am changing jobs. Doing pretty good now. -BraveRifles

reply: "Do you have health concerns since you served?

--------------------------------------------------------------------------------

Keep asking those questions.

I started learning a lot from the Gulf War vets on various discussion forums.

If you check my other posts - you will see that I feel I learned about what Gulf War vets with 'the syndrome' are dealing with after studying about 2-butoxyethanol used on the Exxon Valdez oil spill cleanup - Very similar health concerns. Have your doc check Retic ratio if you have fatigue with no other explanation. You may be approaching hemolytic anemia.

Of course it is the central nervous system diagnosis that gets the most attention: difficulty sleeping; difficulty concentrating; depression; suicidal tendencies, etc ... endocrine disruption: headaches in back of head; odd readings on thyroid, or blood sugar, or blood pressure; concerns with skin, liver, kidneys, reproduction concerns - Dear Maggie

quote:
Howdy, just joined here: 82nd ABN /GW Veteran - txhis
Where are all the Vets at?
3rd Armored Cavalry Gulf War vet here. That many have died since the war? Does that count traumatic deaths? How about things like heart disease in some of the older veterans that were in their 50's already during the war? -Brave Rivles
posted February 18, 2004:
You can hang in there

You can be part of the answer to cause of Gulf War Syndrome. This may be the biggest, most important battle of your life, soldier. Has the US Govt figured this out? Have all those doctors? (Not yet, doesn't look like) But SOON, and you can HELP!

Thanks, Gale, I learned something from the CFS forum

quote:
elastase is an enzyme in the granules of leukocytes. It causes epithelial damage, vascular hyperpermeability, mucus hypersecretion etc. Increased release will contribute to the symptons in CFS
I conclude that this is part of what a study of what the red blood cells is doing - will uncover.

Not the total number of RBCs that matter. Those affected may have enough counts of red blood cells but with low function?

 Keith - I feel so old!

  Slim & other EVOS workers

Have you noted this lists 2-butoxyethanol AND diethylene glycol monobutyl ether as solvents troops in 90-91 were exposed to?

I only mention the Exxon Valdez oil spill cleanup chemical because except for ethylene oxide in Corexit that was experimental then, and not primarily used - 2-butoxyethanol was the chemical of harm. If I had not talked to a lot of workers, I wouldn't have known that they have the same symptoms as you have.

My focus today, is to educate the public that they are at risk for all of these symptoms too; my concern today is for the military today.

What can be done to help either of your groups? Not much, sad to say. No matter what the diagnosis of Central Nervous System damage, it is something that chemicals (medications) can not remedy. And to overlook the blood damage until it becomes very extreme, that is too bad, because it there progressing & underlying everything.

I suppose for both of your groups I hope that there will be no more experimenting on you, such as for Chad when they put a needle behind his ear into his head and ground around and hurt him more (no help at all)

There's not much more to say; I did speak to another in Staff Sgt James Alford's group, and I assure you, 'gulf war syndrome' is still going on. And this forum has brought up about as many sent home for 'mental' problems as have died in the war to date (550) and more than the normal amount of suicides, too.

Anyone know where the military is using Corexit 9527? Bad product (How does 38% 2-butoxyethanol sound ... with just a little ethylene oxide?)

quote:
Note this disclaimer "Disclaimer (provided with this information by the compiling agencies): This information is formulated for use by elements of the Department of Defense."
Sample MSDS
Author Topic:   Bones hurt?
Mother Margaret
Member
 posted February 21, 2004:
When your bones hurt, it is very important to know how your red blood cells are functioning. Sounds odd doesn't it?

When there is severe red blood cell anemia, red blood cells may start reproducing outside of the spine - it can cause spinal cord compression... per one so diagnosed: "Once this happens you have a 72 hour slide period to have surgery to release the compression or a bone marrow transplant."

For exact terminology & example - check this

Turns out that as long as the bone marrow is able to compensate for early death of red blood cells, the anemia won't show up in what is normally tested for such: hemoglobin, hematocrit, even red blood cell counts (red blood cell count can be omitted from laboratory recommended list of tests needed). Retic ratio may give an indication. Are your red blood cells low functioning?

If you suspect benzene exposure (which reportedly suppresses production of new red blood cells rather than simply killing existing red cells), a more usual marker of "benzene poisoning" is an abnormally low lymphocyte count. So an absolute cell count that can be done in a regular blood test is an important number.

Either way, whether you suspect a chemical exposure or oil exposure, knowing what is going on with the red blood cells is important.

 Or back up info here

Blood work doesn't say why the fatigue? *

Gulf war vet Admin- leaving site *

'MM' Leaving - Said all I need to say for now *